Arthrogryposis Awareness Day

The Provincial Government of Newfoundland and Labrador has recognized June 30 as Arthrogryposis Awareness Day, to promote greater understanding of the condition and those affected by it. http://www.releases.gov.nl.ca/releases/2015/health/0630n03.aspx

Arthrogryposis Multiplex Congenita (AMC) is described as congenital (from birth) joint contractures in two or more areas of the body. A contracture is a condition in which a joint becomes permanently fixed in a bent or straightened position, completely or partially restricting the movement of the affected joint.

Our friend, Ava was born with a type of Arthrogryposis called Amyoplasia, which¬†is characterized by severe joint contractures and muscle weakness. You can read Ava’s story here – http://www.throughthetulips.ca/2015/06/tulip-tales-ava.html

DSC_8608On June 30th, we wore blue to show our support for Ava, and all other families who are affected by Arthrogryposis!

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