The Provincial Government of Newfoundland and Labrador has recognized June 30 as Arthrogryposis Awareness Day, to promote greater understanding of the condition and those affected by it. http://www.releases.gov.nl.ca/releases/2015/health/0630n03.aspx
Arthrogryposis Multiplex Congenita (AMC) is described as congenital (from birth) joint contractures in two or more areas of the body. A contracture is a condition in which a joint becomes permanently fixed in a bent or straightened position, completely or partially restricting the movement of the affected joint.
Our friend, Ava was born with a type of Arthrogryposis called Amyoplasia, which is characterized by severe joint contractures and muscle weakness. You can read Ava’s story here – http://www.throughthetulips.ca/2015/06/tulip-tales-ava.html
On June 30th, we wore blue to show our support for Ava, and all other families who are affected by Arthrogryposis!